Thread: How do you feel?

I've been robust and healthy all my life until several unexplained falls in 2014, three broken bones, vocabulary gradually slipping, couldn't keep enough notes to remember things, lost my job of 17 years... wife finally dragged me to my doctor. The day after a CT doc told me I had brain cancer; next day he ordered an MRI to better see the tumor - radiologist told my doctor he didn't know what I had. I was admitted to the hospital Septembr 30 and then began two weeks of testing - brain biopsies, arteriogram, spinal taps, blood tests several times/day. Teams of doctors with different specialities coming into the room twice/day telling me they still hadn't figured it out. After a while I could barely speak, my balance was shot, thinking muddled and I lost 25 lbs. Finlly diagnosed with an extra-rare brain disease (not malignant or contagious) and started on chemotherapy. Home for halloween.

Lost my memory - can't remember 90% of new stuff if I don't somehow record it (smartphone claendar works pretty good)
Lost my balance - can't risk walking without a cane.
Lost a lot of cognitive skills.
Lost my job.
Gave up a 45-year motorcycle passion - sold my wheels
Can't drive for indefinite period - selling my car.
Stay-awake stomach pain oe headaches from meds a few nights/week..
My eyesight craps out withut notice sometimes for hours, sometimes for five minutes.
Five minute things might take half an hour, might not.
No prognosis - might stay hw I am or might improve x-percent.
Not supposed to shave with a straight razor for a year, crap icing on the cake.

Happy to be alive, not depressed, wife and kids still love me. Sense of humor usually intact in spite of lliving in slow motion etc., etc.

How do I feel? No idea. Ask me later.

Originally Posted by MisterMoo

I...snip...
Happy to be alive, not depressed, wife and kids still love me. Sense of humor usually intact in spite of lliving in slow motion etc., etc.
How do I feel? No idea. Ask me later.

May we all deal as well with infirmity!
Thank you!
~Richard

Mister Moo, without your humor you'd be in dire straights. I applaud you for it. Can you still shave with a DE?
(and I was going to post a complaint about a hangnail)

Get better and please, keep us informed as you gain strength and recover.

Originally Posted by Razorfeld

Mister Moo, without your humor you'd be in dire straights. I applaud you for it. Can you still shave with a DE?
(and I was going to post a complaint about a hangnail)

Get better and please, keep us informed as you gain strength and recover.

Finally boxed up my SRs last week. Got a bargain R41 on eBay last week. Lets just say it's safety if anyone asks.

Originally Posted by MisterMoo

I've been robust and healthy all my life until several unexplained falls in 2014, three broken bones, vocabulary gradually slipping, couldn't keep enough notes to remember things, lost my job of 17 years... wife finally dragged me to my doctor. The day after a CT doc told me I had brain cancer; next day he ordered an MRI to better see the tumor - radiologist told my doctor he didn't know what I had. I was admitted to the hospital Septembr 30 and then began two weeks of testing - brain biopsies, arteriogram, spinal taps, blood tests several times/day. Teams of doctors with different specialities coming into the room twice/day telling me they still hadn't figured it out. After a while I could barely speak, my balance was shot, thinking muddled and I lost 25 lbs. Finlly diagnosed with an extra-rare brain disease (not malignant or contagious) and started on chemotherapy. Home for halloween.

Lost my memory - can't remember 90% of new stuff if I don't somehow record it (smartphone claendar works pretty good)
Lost my balance - can't risk walking without a cane.
Lost a lot of cognitive skills.
Lost my job.
Gave up a 45-year motorcycle passion - sold my wheels
Can't drive for indefinite period - selling my car.
Stay-awake stomach pain oe headaches from meds a few nights/week..
My eyesight craps out withut notice sometimes for hours, sometimes for five minutes.
Five minute things might take half an hour, might not.
No prognosis - might stay hw I am or might improve x-percent.
Not supposed to shave with a straight razor for a year, crap icing on the cake.

Happy to be alive, not depressed, wife and kids still love me. Sense of humor usually intact in spite of lliving in slow motion etc., etc.

How do I feel? No idea. Ask me later.

Makes my bump on the noggin seek like nothing.
glad you are still positive. As richard says, keep us posted on your progress.

Originally Posted by edhewitt

Makes my bump on the noggin seek like nothing.
glad you are still positive....

I got some bad cards but each week I see lots of people at hospital/therapy who have much higher mountains to climb - not much whining from me. Have not noticed "I wish..." is a good strategy.

Yes, no matter how bad we have it or think we have it there is always someone who has it worse, much worse.

I wish you my best Mister Moo.

I am feeling much better now then at 4:a.m. when I had an uscheduled cardioversion. Awoke around 3:00a.m. with heart rate around 160 or so near as I could tell. Called my cardio Doctor and he tells me to meet him at the hospital ER and he will try and get things more back to normal. The worry is about Q waves or somesuch which I am having more of than he is happy with. I was back home by 6:30, and feeling more like normal of late, so the cardioversion resolved something that was happening temporarily. : ) And he increased my dose of soltolol. I am lucky that the VA pays for all my heart condition related meds.

I have had permanent atrial fibrillation for many years and my left atrium continues to enlarge ruling out ablation to stop the electrical short circuit in my heart. I have had two ablation attempt several years ago to no avail in any event.

My cardio Doctor is a great guy and wants to be contacted regardless of time. He was, in fact, already at the hospital reviewing the heart catheter procedures he had scheduled for the day.

Bob/Iz,

Rest up and feel better. A few hour nap is, no doubt, in order.